"It is not a migraine......" WHAT?????

For the first time since I was diagnosed with migraines over 23 years ago, my doctor told me yesterday that he didn't think it was a migraine. One that is going on it's fifth day. I finally gave in and went to my doctor to find relief, since none of my medication could even dull the pain. He thought at first I had a pinched nerve that was causing my new symptoms, which included tingly feeling on my right side and a cold sensation on the right side of my face. Apparently those aren't migraine related.
As I sit and type this, bare with me, as it all seems surreal at this point.
Doc gave me a shot of Tordal for the pain. It wasn't working, only making me drowsy. At that point I was sent down for a CT Scan to "make sure" everything was OK in my head. Upstairs again to wait for my now worried husband, and the Doc to give the results. Right before Matt walks in, my doctor explains that, "They found a mass/collection of cells at the stem of my brain. Said mass is rated on a scale of 1-4. At this point, with the CT readings, they thought it was at about a one." I asked point blank if this was bad, he said it has that potential, yes. He suggested that I come back in the morning (today) to get an MRI done of my Cervical Spine and Brain. But, since it was so late (5:00), he would schedule it out. Not more than five minutes later, he comes in and says that he has me scheduled stat. I also receive a shot of Demerol, Tordal, and Phenergen, to again try to help with the pain. After all these shots and a small touch of relief, Matt and I "float" down to the Diagnostic Center once again.
Matt was worried about someone watching the children so that he could be with me, but I told him honestly, to just pick them up and wait at home until I call. He can't be in the testing with me anyway, so he should just take care of them and not let on that anything is wrong. Jacob is too smart for my own good, and I don't need my 8 year old worrying about his mother right now. I have enough worry to go around for everyone.
I slept on and off through the MRI and finished up at about 6:00pm. At this point I decide to drive the mile home on my own, I needed fresh air and be by myself for a minute. My wonderful friend at this point had rushed to the house to help Matt out so that he could come up to the hospital. But, I was on my way already, she waited with Matt.
At this point, we had dinner and I tried to make everything as normal as possible for the kiddos, even though the worry on our faces was probably obvious.
I slept off and on all night, with a sleeping pill that didn't help. I took the day off today to wait for that phone call. I can't go to work and concentrate anyway, so I thought I would just hang out at home for the word.
Of course Matt talked to his mom, the nurse, who just graduated with her Master's as a Nurse Practitioner. She stated that if it is fluid on my brain, that the surgery is very common. They would remove my first vertebrae, release the fluid and insert a shunt. No biggie. HA. Whether or not this is common, it would be on top of my spinal cord, wherein lies the risk. But, really, I can't sit here and contemplate what I don't even know for a fact right. Right.
There are a million things going through my head right now, but they don't have a destination. I am waiting for an explanation of what is wrong, what do we do, and what next.
So I am patiently, or not, waiting to hear from the doctor's office. Shouldn't they put these things as the first priority, to call their patients that are barely sitting still, wondering what is happening in their head and give them an idea of what is happening. I would think so, but I don't have that degree to be able to make it happen.

So.I.Wait.